Congress and seminar
Training and Therapeutic Education (ETP)
Here you can find out more about training modules, seminars and therapeutic education programs concerning rare endocrine diseases, all taking place in France.
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If you wish to see the list of congresses and seminars concerning the rare endocrine diseases which are regularly held each year in France, click here !
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Click here to filter out all but the training modules organized by the French universities and thaught by active FIRENDO experts.
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By cliking here you can filter only the therapeutic education programs organized by FIRENDO reference centers for rare endocrine diseases.
ETP Parcours d'éducation thérapeutique des enfants traités par hormone de croissance
Type
Programme d'éducation thérapeutique
Place
Île-de-France : Hôpital Necker Enfants Malades, 149 rue de Sèvres 75015 Paris
Public
Aidants, accompagnateurs,
Patients pédiatriques atteints de la maladie rare
Patients pédiatriques atteints de la maladie rare
Description
Pathologies du périmètre FIRENDO susceptibles d'être concernées par ce programme ETP ::
- Insuffisance hypophysaire acquise
- Insuffisance hypophysaire acquise / Insuffisance hypophysaire d'origine tumorale
- Insuffisance hypophysaire acquise / Insuffisance hypophysaire iatrogène, trauma, Rx
- Insuffisance hypophysaire infiltrative,
- Insuffisance hypophysaire infiltrative / Beta-thalassémie
- Insuffisance hypophysaire infiltrative / Histiocytose langerhansienne
- Insuffisance hypophysaire infiltrative / Sarcoïdose
- Insuffisance hypophysaire multiple non acquise sans PHE
- Insuffisance somatotrope non acquise isolée sans PHE ,
- Kyste de la poche de Rathke
- Syndrome de McCune-Albright
- Syndrome de Prader-Willi
- Syndrome de Silver-Russell
- Syndrome de Turner
- Retard de croissance intra utérin
- Maladies osseuses constitutionnelles
Partners
- Hôpital Necker Enfants Malades, Assistance Publique - Hôpitaux de Paris
- CRMERCD : Centre de référence des maladies endocriniennes de la croissance et du développement - Pr Juliane Leger, coordinateur du site constitutif : Pr Michel Polak
Manager
Pr Michel Polak et Mme Magali Viaud
Address
Adresse mail :: magali.viaud(at)aphp.fr
N° de téléphone : 01 71 19 64 38